On September 17th, 2016, our little boy Lucas (age 5) was diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma). DIPG is a terminal cancer residing in the brainstem - and one doctors hate because it in inoperable. We did everything we possibly could to combat the cancer and chase new science, light and hope for Lucas. In the end, it simply wasn't enough. Lucas died on March 21, 2018, just a few months shy of his 7th birthday.
As parents going through this, we can assure you there is no greater heartbreak. When something like this happens, you understand in an instant what truly matters in life. What matters to us now is doing everything we can to shine a bright light on DIPG and funding much-needed research towards finding a cure.
In that spirit, we have created the Love4Lucas Foundation - in honor of our son.
Our mission is three-fold: 1) to bring attention to and raise awareness of DIPG, a deadly childhood cancer that so few people have heard about 2) to fund research specifically geared towards finding innovative treatment options and a cure for DIPG 3) to provide financial grants to help families of children diagnosed with DIPG.
Throughout this painful journey, your generous support and love for Lucas gave us hope and it is our intention to pay it forward.
Help us Find a Cure
DIPG (Diffuse Intrinsic Pontine Glioma) is a devastating childhood disease in desperate need of a cure. The journey ahead is unknown, but with love, energy and hope we can all be a part of the fight.
Show Your #Love4Lucas with Merchandise
#LOVE4LUCAS Merchandise is now available for purchase! Our friends (and former neighbors in Dumbo), Katie & Brandon Connovitz, are the co-owners of twelveNYC, a brilliant product development company for beauty packaging, private label, and promotional merchandise; they work with several world-class fashion and lifestyle brands. When the idea came up for merchandise, we knew exactly who could help us source the softest tees and perfectly broken-in hats. Before we could object, they proceeded to design, create and donate all the merchandise to our cause! Therefore, every penny of the sale proceeds will go towards the Love4Lucas Foundation. Thank you again, Katie & Brandon - you are as generous as you are talented.